Friday, November 27, 2009

Update on JT

Hello everyone,

Jake and I once again want to take a moment to thank you all! We are SO thankful for your prayers!! Since yesterday was Thanksgiving it is only fitting that we carry that over to today and tell you all we are thankful for. First, we are thankful for or Lord and Savior for watching over JT every day and night as he is in the NICU. We are thankful that He hears our cries and answers our prayers! We are thankful for you, our family and friends for your prayers and for your help in taking care of Ethan. We are so thankful for the NICU staff. They are so loving and so wonderful to us and to JT. We are thankful for our church family and pastors who care for us and for our needs. We are very thankful that JT has put on weight!! Today he weighed 3lbs 13oz. His little cheeks are filling out and I am beginning to see a little double chin :-) This is such an answered prayer! He is also eating just over an ounce of food per feeding. AND, I am beginning to nurse him. Jake fed JT a bottle yesterday and loved every minute of it! JT is still learning how to eat so one or two feedings a day where he actually does the work is about all he can do right now. We are looking forward to the his continued weight gain and development so we can feed him more and more and get him home! He is maintaining his body temp. but is still in an isolette. They don't want to stress his body too much too soon. As he gains weight they will look into putting him in an open crib. We don't want things to move more quickly than is best for Justin, but it's hard not to get excited!
We continue to pray for JT's Brady's. He continues to have them daily. He decides the best time to have a Brady is when Jake and I are there. But he almost always brings his heart rate back up before a nurse can even get into the room. So, he is getting better. We are just looking forward to them stopping all together! The nurse practitioner told me that if JT continues to keep up the good work we are looking to get him home between 36 and 37 weeks. So, we are looking at about 2 more weeks...maybe we will get the sweetest Christmas present we can imagine!

Again, thank you for keeping us all in your prayers. We continue to feel God's presence and peace in our lives. We have a loving God and we know he hears all of our prayers. He answers them in different ways, but we know He hears us and we are so thankful for that.

May God bless you all!

Love in our Lord and Savior,
Jake and Melissa

Friday, November 20, 2009

Update on JT

Hi everyone,

This week has been fairly uneventful which is nice. JT continues to do well. Yesterday we spoke to a few doctors about his weight gain. Sadly, he isn't doing well in this area. He is able to digest my milk well but he hasn't been able to put any weight on. He keeps fluctuating around his birth weight, but has yet to surpass it. They can't/wont try to bottle feed or allow me to nurse him until he can gain and maintain his weight. So, right now that is a big prayer. He is also still in an isollette which is normal. He is at room temp and is able to maintain his body temp well which is a huge praise! But again, they can't/wont put him in a crib (one step closer to coming home) until he gains and maintains his weight.
Our other prayer request sounds slightly scarier than it is. JT (as most premies do) suffers from bradycardia. Basically his brain is still very immature and it forgets to tell his hear to beat. His heart rate then drops sometimes very low. His Brady's (as the hospital calls them) have become more frequent this past week. They aren't sure if it's because he is off of the breathing machines or if it is b/c he is eating more and suffering from reflux. They are going to give him a few days to see if he needs to go back on the CPAP machine. The praise in this is that even when his heart rate drops his blood oxygen level remains high and his breathing remains strong as well. Plus, he is able to pull himself out of these little attacks.
Lastly we ask that you would pray for health of our family. When anyone in the household is sick I cannot hold JT. Ethan has been sick and last week Jake was unable to go to the hospital at all due to a fever. Thankfully, I have not gotten anything, and being as sleep deprived as I am that is a miracle! So if you would, please pray for our health. Pray that God would just have a shield around us. We want to see and love JT as much as we possibly can but we also want him to remain as healthy as he possibly can.
We continue to find strength and endurance in the Lord. He is so loving and faithful! We are so blessed and we know that God is going to use JT and this situation to His glory. God deserves all of our praises and thanks. We want to thank you all once again for all of your prayers and encouraging words. God is listening to your petitions on our behalf, we know that! Thank you for taking time to love us from where you are and to pray for our family. The blessings we have received from God are abundant.

Our Joy is in the Lord!

Many thanks and blessings to you all,
Jake, Melissa, Ethan and Justin

Sunday, November 15, 2009

GREAT NEWS on JT!


WOW!!!! What a day! Jake and I have been so blessed today we are just beaming! This morning we were blessed at church by the love and support of friends. Then when we got home we had received love and support through the mail. Later in the evening we had a great visit from our neighbors who just wanted to check in. We have been so cared for, it's just amazing!
Tonight, we went to visit JT, and..... he is off all breathing machines! This is a miracle and a huge praise!! Yesterday when I was visiting him they had just changed him from one breathing machine (sipap) to a lower grade machine (cpap) Then after he was on the cpap for a week (this is what they told me yest.) or so they would lower the level of the machine again. But tonight when we went in, he was off of everything!!! We could see his beautiful face for the first time since he was born. He had a bath and they dressed him in a cute little onesie. Oh he was so perfect!!! The only thing on his face now is simply the tube to feed him. They are watching him for the next day or so to make sure his little body can handle all this hard work, but he has been off all machines for 12 hours now! God is so good friends!! We are so thankful and so encouraged. It can be disheartening receiving hard news day after day so this just picks us up and gives us a huge energy boost!!

Thank you! Thank you for your prayers! God is listening. We hope you will join us once again in praising the Lord for his provision and mercies! YAY GOD!

Love in Christ who gives us strength
Jake and Melissa

Saturday, November 14, 2009

Hello everyone,

We hope you are doing well. Yesterday JT had another sonogram of his brain. Jake was able to talk to the doctor at the NICU and today I had a chance to sit down with her to discuss JT. Our huge praise is that the bleeding in his brain is no longer an issue!! YAY GOD!!!! The other news we received wasn't so good. JT has something called PVL (Periventricular Leukomalacia) This is the first thing they noticed on the sonogram and the big thing we have been praying for. Before I go any farther, we would encourage you to not look this up on the internet. You will drive yourself crazy! Plus so much of what is on the internet is not from professional resources. Okay, so basically he has damage to the white matter of his brain. The damage seems to indicate that he COULD have motor development delays. The doctor told us that he will most likely have to go through years of physical therapy beginning at a very young age. She also said that they believe he will experience most of the delay on the left side of his body. HOWEVER, there are cases where although there is damage it never shows. The brain is able to heal itself. It is important for you to know that Jake and I are at peace in all of this.

Today I am sitting here writing you in a peace and calmness that only the Lord can provide. I have had a few people express their concern for me in the sense that I haven't had many break downs. Believe me, I have cried at times. But the strength that I have, that Jake and I have isn't ours. We have strength in the Lord. When you look at us and wonder how we are making it through, it's important for you to know that we aren't doing it with our own strength or courage. We don't have that much strength or courage. We are doing this by leaning on the Lord and trusting Him! God is walking with us and when He isn't walking next to us, it's because he is carrying us. When we can't manage to take another step, He lovingly scoops us up in His arms and carries us. I was thinking that it's like when Jake scoops Ethan up in his loving arms. Ethan feels safe and loved and at peace. That is how we feel in the arms of our Father in Heaven. We feel loved, safe and at peace. The other thought that struck me today was that God tells us in the bible that He will never give us more than we can handle. Then I thought, WOW! God must really have faith in Jake and I. We are so blessed to be going through this. We are being put through an incredible challenge and thankfully God is right here with us. We are blessed not only by and through this challenge, but we are blessed by our family, friends and church. We have been given the opportunity to go and visit JT EVERY SINGLE DAY since he has been born. It's amazing!! I have a child at home who needs to be cared for, and that need is being met. I have a husband who has the ability to work around visits to the hospital, although it's a challenge his company and his boss are allowing him to flex his schedule... what a blessing!! Even in my sheer exhaustion my joy is in the Lord.

JT may have some serious struggles in the years to come, and he might not. But anyway you look at it, he is a blessing! He is a miracle from God and Jake and I are so blessed to have our two boys. We have an amazing life and we are so thankful for all God has given us. Please join us in praising God for all of His gifts.

We will be praying and have been praying over JT every day! We will continue to pray for healing because God can and does. We know that you will be joining us. We know that when we don't have the words to pray, you are there praying in our stead. We thank you for that. We know God is listening!

Overall Justin is doing very well. He continues to eat well, and he is on the next lower level machine for breathing. He is breathing 100% on his own. The machine just gives some added pressure so his lungs don't collapse when he exhales. As for the issues with the brain, we won't know anything until he is 6mos to a year old. So for now we are going to love him and do what we can to help him develop. Mostly we are going to pray for him.

We love you and are so appreciative of all of your love and support.
Jake, Melissa, Ethan and JT

Monday, November 9, 2009

Hello all,

First I want to thank you all for praying for our family and for our little guy. God is good and in hard times we need to rely on His love and peace. That is what Jake and I have been doing. We are trusting in the Lord in these hard times. He is our strength and I am so thankful for that strength, b/c I don't have what it takes without Him!
I am sure you are all wondering about the brain sonogram so I won't keep you waiting. The news wasn't what I had hoped for. I was so excited going to see Justin today! I was thinking about the email I was going to send out tonight. The email that was going to say that everything was fine. Sadly, that is not the email I am sending this evening. The doctor told me that the area of concern was "unchanged" and that they saw something else. My heart sank as I was holding my precious little angel in my arms. The doctor began to tell me that he has a brain hemorrhage. His brain is bleeding. Then she proceeded to tell me there is nothing they can do about it. All they can do is watch it to see what happens. So, they are going to do another sonogram on Friday to see if there are any changes. Then they are going to call a specialist at Children's hospital to take a look at the sonograms.
The prayer is that the bleeding doesn't go into his ventricles. Please join us in prayer. I don't know what God's plan is, but I know that it is good, no matter what! My prayer is for healing! My prayer is that Justin's brain is miraculously healed!! Please also pray for my heart and for my strength. I need God to fill me with peace.
Jake is amazing and so strong! He is keeping me grounded and reminding me of God's love and grace. He is a fantastic husband and I am so blessed! Ethan is doing incredibly well! He is with someone new everyday and he just plays happily. I hate leaving one son to go and see another. It is the worst feeling, but Ethan makes it so much easier. He is such a huge blessing in my life.
Again, thank you all for the prayers.

Love,
Jake and Melissa
For I know the plans I have for you, declares the Lord. Plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11

PS - know that I will update you when we learn more about Justin's condition.

How to help the Foulke Family

From our friend Rebecca Smith....

Hi Friends of Melissa and Jake-

I attend McLean Presbyterian Church and am organizing meals and child care for the Foulke’s while JT is in the hospital. We are hoping to arrange meals on Mondays, Wednesdays and Fridays and child care for Ethan for a few hours a day Mondays – Thursdays. To manage all of this I am using the “Lots of Helping Hands” (LHH) web site. If you are interested in helping, please go to the LHH website:

http://www.lotsahelpinghands.com/c/619602/

Fill out the right-hand side of the form which is a Request to Join the Community. Once you have done this, I will receive an email back stating that you are a "pending member". I will "approve" you on the LHH website and then you will be automatically added to the community and sent instructions for setting a password, signing-in and looking at the calendar to see how you can help.

Please feel free to pass this email on to others and give me a call if you have any questions.

Many thanks!

-Rebecca Smith

Friday, November 6, 2009

Pictures!!!


Prayer request for JT

Hi all,

We have a prayer request specific for this weekend. We got a call from one of JT's doctors the other night to let us know how his brain scan went. The good news is there is no bleeding in his brain. That is a huge praise!! Then she proceeded to tell me in doctor terms (no definite answer or explanation) that the radiologist had some concern about an area in his brain around some ventricles. When I asked what the concern was she said that nerve fibers of his limbs run through that area of the brain. That was about all I could get out of her. She said she wasn't overly concerned but sometimes I feel like they say that so you don't worry too much. Honestly, I am not worried, but I would really love some prayer on this paticular issue. Justin will have another brain scan on Monday to determine if there are any changes. When I asked if changes were good or bad, I got the "it depends" answer. So sadly I don't have much information just that there is concern over an area of his brain. So please pray that the brain scan on Monday comes back showing no reason for ANY concern! JT has been doing SO well!! He is so strong and such a fighter. The doctors are all impressed with how he is doing and so are Jake and I. Please pray that God would continue to have his hand upon Justin and that his brain would be fine!

Thank you all so much for your faithfulness and prayers! We can feel the presence of the Lord in all of this. We are comforted daily by His grace and love for us!

In Him who gives us strength,
Jake and Melissa

Tuesday, November 3, 2009

1 week later

Hello everyone!

I can't believe it's been almost 1 week since I had JT. So much has occurred since his birth. The big news and praise is that I got to hold him today! I was able to hold him for about an hour. It was so wonderful!! So here is the full update. JT started off on a ventilator then was taken off and put onto a sipap machine. The sipap was a little too much work for him at the time so he was placed back on the ventilator. After about 48 hrs he was then placed back on the sipap machine. So far he is doing very well! He is breathing normal air with no added o2 and they are reducing the sipap machine as his lungs get stronger. We saw the cardiologist yest. and were there while they did a sonogram of his chest. The open valve in his heart has closed. HUGE PRAISE! They also performed a scan on his brain to look for bleeding and although we haven't heard the "official" results we have been reassured that if there was any concern we would know. So, that too is a praise! They will begin feeding him my milk through a tube probably tomorrow and if he is able to handle it they will increase his feedings daily.
The nurses tell us daily that Justin is a firecracker! He lets them know whenever he is unhappy! He is a fighter and FULL of life :-) They love to see babies with fight and he's got some! The nurse today asked us who in our family has the temper... uh oh! :-)
One of Our two biggest prayer requests are for JT's lungs. He has severe lung disease due to the premature birth and the fact that he was unable to get any steroids to help his lungs develop. Although he is doing very well and the lung disease is normal we are praying it goes away quickly and that his lungs strengthen. Our second prayer request is for Ethan. Ethan is such a low key laid back little man and he knows that something is wrong but he doesn't understand what. He has had some hard days and some unusual (for him) meltdowns. All normal and all understandable. Please pray for him. Pray that he knows his mommy and daddy love him so much! He isn't use to having me leave him daily. He is so amazing and so strong! He has been with friends/family everyday since JT was born and has been amazing for them! Please just pray for his adjustment to all that is happening. Ethan amazes me and I am so blessed to have him as my little man.

Praises:
- I was able to hold JT!
- The amazing support of of friends and family. We have so many people offering to watch Ethan for a while so we can get to the hospital. We are SO blessed by so many people!
- Ethan has been his wonderful amazing little self for all who have watched him.
- JT's heart has healed
-JT's head scan was clear
- I have an incredible husband who is working hard at his job and is keeping our family together
- Jake and I have complete peace about JT and our family. We trust in the Lord with all our hearts!

Prayers:
- Pray for Ethan to adjust to all the radical changes going on. Pray that we would find ways to show him how much we love him daily.
- Pray for the healing of Justin's lungs
- Pray that Justin is able to eat and his digestive system is able to handle milk
- Pray that JT begins to gain weight slowly. (They need him to gain weight slowly b/c if he does it too fast they will have to slow him down. His little body can only handle so much weight)
- Pray for our marriage that we would continue to love and support each other in whatever way we can.

Thank you all for your prayers and words of encouragement. Jake and I have such a peace and we know that God is listening to you all! We are so thankful for you and for your love. God is good and He is in control of all that is occurring. We have complete faith in Him!

May He bless you all!
The Foulke Family

PS I am sure I have missed people on this email, please feel free to help me out and pass it on. thanks!