Thank you all again for your patience.
First the orthopedist: the good news is that the bump on his hand is a fluid filled cyst and should go away on its own. Which means... no surgery! YAY! Jake and I were both relived and excited that as Jake put it "2 bullets have been dodged". So for now, no hand surgery. Instead, like everything else, we will continue to keep an eye on it to make sure it goes down and goes away.
The MRI went well. I have to say I am thankful for the friends I have who have had to put their children to sleep for one reason or another. Their preparation of the event was so helpful to me. I was calm and at peace, knowing what could happen. Jake and I were both there when JT went to sleep and both there when he woke up. The scariest part for me was the fact that he did this gasping for air kinda thing when he was put under. Apparently that is normal. Scary, but normal. After the procedure they came out to get us and took us back to his room. They warned us that they had a had a hard time finding a vein and had to prick him a "few times". They also said we might see some bruises in the areas they tried and some prick marks, but assured us that he was asleep and didn't feel anything. Now, the reason I said a "few times" was simply because I would like to know what the definition of a few times is. We counted 5 pricks on the top of one hand, 4 or the top of the other hand, 2 on one wrist, 1 on the other wrist and finally they got a vein in his foot. His poor little hands were and actually are still bruised. I kept telling myself he didn't feel it and those bruises probably don't hurt but still. A FEW? I don't think so. Maybe quite a few or even a lot would have been a better way to share this information with us.
With all that said we don't have any results. Sadly I don't think we will hear anything until our next appointment in mid January. I am going to attempt to email JT's neurologist to see if she has time to take a look and let us know what she sees.
So for now, please pray for the results of the test. Pray for our hearts that we will continue to feel the peace that passes understanding. Join us in praising God for this incredible season where we get to celebrate the birth of Christ Jesus our Lord and Savior! We are abundantly blessed and happy and overjoyed by the grace and mercy God has shown us.
Merry Christmas!!
Tuesday, December 21, 2010
Thursday, December 2, 2010
Last week and next week
I am so terrible at updating this blog, sorry friends. Thanks for bearing with us.
So last week JT had a Urology appointment. I believe I shared earlier that it is common for premie boys to have their testicles not descend. This is fixed with surgery. So we went to get him checked out. Right now he does not require surgery. Instead we are going to wait 6 mos to see if they make their way down to where they are suppose to be. Praise God! We can check of one of the potential surgeries without even having it. YAY!
Last week JT also had speech therapy. He is doing incredibly well! We have learned that he really enjoys solid (hard crunchy foods) and has a lot of difficulty with the more liquidy foods. So we have finally moved him to stage 3 baby foods. Most of them tend to have some chunks in them he can chew on. He is learning to close his mouth around the spoon and we continue to help him become more aware of his mouth and tongue through exercises.
Finally, although JT was very sick last week he blessed Jake and I with so much joy! The day after thanksgiving, JT SAT UP! It took a while and some help getting into the right position, but he did it! He sat there without using his hands to support himself. It was absolutely incredible! I was gleaming and so was JT. He was so proud of himself :-)
Next week is another long week. We start off by having PT on Monday morning, then an appointment with the orthopedist on Monday afternoon. He is going to be taking a look at a rather large bump on JT's left hand. This too could potentially result in surgery. We will just have to wait and see. Then on Thrusday he is scheduled to have his MRI. This is a rather large deal because they have to sedate him. According to what I hear from friends it is a very challenging thing to be present for. I will be with him until he is asleep. Then they will take him away for the MRI. This is also a huge prayer request. Probably the biggest one we have had in a very long time. Justin's neurologist and ophthalmologist think they are going to see different things. The MRI is going to tell us more about his brain damage. The bottom line is we are praying the neurologist is correct and the ophthalmologist is wrong! I could explain more but it's really long and crazy. So if you are reading this and you are willing, we would love to have your prayers and support.
Overall, JT is doing so well. We are so thankful for God's provisions and comfort. JT is babbling and smiling and laughing. He certainly knows who mommy and daddy are. He doesn't like anyone except us holding him :-( argh. But that is a good thing too. It means there is brain development and it's actually an appropriate time for him to be going through attachment issues. So for that we are thankful!
We are abundantly blessed and we are so thankful for our Father in Heaven. He gives us strength when we have none left. He gives us peace as our child continues to see more and more doctors. He grants us wisdom and He blessed us with a very loving big brother for Justin. God is good and we are so thankful that we get to praise Him.
Thank you all for your prayers, love and support. I WILL update you before Christmas if not sooner as to how next week goes.
So last week JT had a Urology appointment. I believe I shared earlier that it is common for premie boys to have their testicles not descend. This is fixed with surgery. So we went to get him checked out. Right now he does not require surgery. Instead we are going to wait 6 mos to see if they make their way down to where they are suppose to be. Praise God! We can check of one of the potential surgeries without even having it. YAY!
Last week JT also had speech therapy. He is doing incredibly well! We have learned that he really enjoys solid (hard crunchy foods) and has a lot of difficulty with the more liquidy foods. So we have finally moved him to stage 3 baby foods. Most of them tend to have some chunks in them he can chew on. He is learning to close his mouth around the spoon and we continue to help him become more aware of his mouth and tongue through exercises.
Finally, although JT was very sick last week he blessed Jake and I with so much joy! The day after thanksgiving, JT SAT UP! It took a while and some help getting into the right position, but he did it! He sat there without using his hands to support himself. It was absolutely incredible! I was gleaming and so was JT. He was so proud of himself :-)
Next week is another long week. We start off by having PT on Monday morning, then an appointment with the orthopedist on Monday afternoon. He is going to be taking a look at a rather large bump on JT's left hand. This too could potentially result in surgery. We will just have to wait and see. Then on Thrusday he is scheduled to have his MRI. This is a rather large deal because they have to sedate him. According to what I hear from friends it is a very challenging thing to be present for. I will be with him until he is asleep. Then they will take him away for the MRI. This is also a huge prayer request. Probably the biggest one we have had in a very long time. Justin's neurologist and ophthalmologist think they are going to see different things. The MRI is going to tell us more about his brain damage. The bottom line is we are praying the neurologist is correct and the ophthalmologist is wrong! I could explain more but it's really long and crazy. So if you are reading this and you are willing, we would love to have your prayers and support.
Overall, JT is doing so well. We are so thankful for God's provisions and comfort. JT is babbling and smiling and laughing. He certainly knows who mommy and daddy are. He doesn't like anyone except us holding him :-( argh. But that is a good thing too. It means there is brain development and it's actually an appropriate time for him to be going through attachment issues. So for that we are thankful!
We are abundantly blessed and we are so thankful for our Father in Heaven. He gives us strength when we have none left. He gives us peace as our child continues to see more and more doctors. He grants us wisdom and He blessed us with a very loving big brother for Justin. God is good and we are so thankful that we get to praise Him.
Thank you all for your prayers, love and support. I WILL update you before Christmas if not sooner as to how next week goes.
Learning to share
Ethan brings such incredible joy into our house! Even while teaching him tough lessons it's so hard not to laugh at him. And to be honest, most of the time we do. Oh well, life is too short not to laugh at your kids.
This morning at breakfast Ethan says "mommy, may I have an orange orange please?" (he is telling us the color of the orange, not a typo) I of course say "yes you may, thank you for asking so nicely." I take the orange to him and put it on his plate. Jake then turns and says "Ethan may I have a piece of your orange please?" Ethan of course says "no, this is Ethan's orange." I then step in and say "Ethan we need to share. Please say "daddy, would you like a piece of my orange?" So Ethan being so obedient says.... "daddy, would you like a piece of mommy's orange?" LOL! Jake and I started cracking up! How can you not, really. This kid is just too smart!
So we lost the battle this morning on sharing, however... this afternoon Ethan's true colors shined through. JT was a little fussy this afternoon so Ethan says "mommy, he needs a cheerio." He goes and gets JT 1 cheerio and takes his binki out and feeds it to him. "here you go JT." Justin had the BIGGEST smile at that moment. I then decided to put JT in his special chair on the floor. I told Ethan he could keep giving JT 1 cheerio at a time. I went into the kitchen to do some dishes and get dinner rolling when I look over and hear Ethan "here you go JT. GOOD BOY! YOU DID IT! That's so good!" My heart melted! (you can imagine his tone, it's the way I talk to JT, you know mommy style, all high pitched and excited).
Needless to say friends, when you think you have failed teaching your toddlers the lessons of life take a look when they aren't paying attention. I bet your lessons have gone farther than you think!
This morning at breakfast Ethan says "mommy, may I have an orange orange please?" (he is telling us the color of the orange, not a typo) I of course say "yes you may, thank you for asking so nicely." I take the orange to him and put it on his plate. Jake then turns and says "Ethan may I have a piece of your orange please?" Ethan of course says "no, this is Ethan's orange." I then step in and say "Ethan we need to share. Please say "daddy, would you like a piece of my orange?" So Ethan being so obedient says.... "daddy, would you like a piece of mommy's orange?" LOL! Jake and I started cracking up! How can you not, really. This kid is just too smart!
So we lost the battle this morning on sharing, however... this afternoon Ethan's true colors shined through. JT was a little fussy this afternoon so Ethan says "mommy, he needs a cheerio." He goes and gets JT 1 cheerio and takes his binki out and feeds it to him. "here you go JT." Justin had the BIGGEST smile at that moment. I then decided to put JT in his special chair on the floor. I told Ethan he could keep giving JT 1 cheerio at a time. I went into the kitchen to do some dishes and get dinner rolling when I look over and hear Ethan "here you go JT. GOOD BOY! YOU DID IT! That's so good!" My heart melted! (you can imagine his tone, it's the way I talk to JT, you know mommy style, all high pitched and excited).
Needless to say friends, when you think you have failed teaching your toddlers the lessons of life take a look when they aren't paying attention. I bet your lessons have gone farther than you think!
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