I am sitting here with tears still welling in my eyes. This morning at 9am the lawyer called. She informed me that she was unable to speak with the neurologist on Friday because he had brought the wrong case file to the meeting. I was so down hearted, another delay. Then she said she just got off the phone with him and called me. Are you sitting down? Do you have a box of tissues? The neurologist agreed with us that his brain injury was do to a bad delivery! He is going to write a letter of recommendation stating just that. The lawyer will now send Jt's case onto the fund. There is really no reason they should deny him at this point in time. It is not a done deal, but it's close! So very close!
I started crying on the phone with the lawyer. I tried to call Jake immediately who was in a meeting and the twins therapist was here too. I just couldn't control my tears of joy, relief and years of waiting. The weight lifted off my shoulders is unreal. I keep telling myself not to get ahead of myself. It's not a done deal yet, but this letter will carry a lot of weight and it's exactly what was prayed for!
Oddly, I also find myself a little saddened by this news. What if we had a better doctor? What if she had done a c-section. I know, doctors are human too, they make mistakes. I am not angry with her, I am sad. Sad that it happened to my little boy. In the same regard, my little boy is one of the most incredible people I have ever met! God has a plan for him, God has always had a plan for him. God knows who he is and who he is going to be. I find assurance in that. Justin, my sweet, inspiring, music loving Just in Time is going to change the world one person at a time. I do not know a single person who has ever spent time with him and hasn't been changed by him in a good way. His smile brightens the worst of days and brings joy to the joyless. I might be sad, but I also look at him and wonder what he will be like when I meet him in heaven. Fully functioning brain and body. This kid is exactly who God made him to be, and I find joy and peace in that.
Thank you! Thank you for praying with us, for encouraging us as we have traveled this road! Praise be to God our Father for opening the hearts of so many. I am in awe. I am so thankful, so humbled, so relieved. I could go on and on but I am running out of words. My emotions are consuming me again. A whirlwind of joy and excitement.
Monday, March 30, 2015
Thursday, March 26, 2015
Trusting in God - you can't go wrong
I believe that I have a great relationship with the Lord. When I am angry, I tell him. When I am happy, I tell him and thank him and praise him. When I am hurt, specifically by him, I tell him. God can handle anything I throw at him. Last year, after the twins and while dealing with cancer, God and I had many middle of the night twins screaming, me crying and asking God why he hated me moments. I asked what did I do wrong, why do you hate me? Why has all this crap happened to me. I am not this strong, I don't want to be this strong! Now, on the other side of that dreadful year I can see his hand so much more clearly.
Earlier this week I posted about the meeting with the lawyer and neurologist. I filled you in on how I am choosing to trust God because I have heard him tell me not to worry. I have heard him say "I've got this." Today, Jake and I were talking money, its a daily conversation in our world. Ethan needs clothes, twins need clothes, boys need shoes, I need clothes after losing 25lbs. Justin's equipment needs, therapy bills (past and present) He still needs botox... the list goes on and on. But, today I said to Jake "I refuse to be an Israelite..." You see, when Jake and I first got married our goal was to read the bible in a year. We still haven't succeeded, but that's not the point. The point is that the book of Leviticus is a hard book to read. Jake and I would sit there and get SO annoyed at the stupid Israelites. I am not kidding! They were such whiners! All they did was complain. God would answer their complaint with a gift and then they would find something else to complain about or better yet, they forgot about the gift from God all together. It was infuriating. It was infuriating until I realized I am so much like that! How quickly I forget the good gifts, the blessings, the grace and mercy. How quickly do I turn and get angry that I didn't get my way. How spoiled am I?!
I continued talking to Jake saying that God has told me he is going to provide this equipment and I am choosing to trust in him. He has been faithful, he has provided our EVERY need since being in TX. He has blessed us beyond what we could imagine!
Because I believe in allowing people their blessings in Heaven I will not share details. I want this to be anonymous and I want them to receive the full blessing of God. In short, Jake and I have the money to buy Jt's wheelchair! Tomorrow we will pay for the wheelchair! Tomorrow has enough worry of it's own, today, today we will rejoice and we with thank God for the kindness and generosity of people. Today we will ask the Lord to bless them as they have blessed us.
Tomorrow is the lawyers meeting which we would still love prayers for. Tomorrow is also JT's IEP meeting. We would love prayers for wisdom for that too. Next year JT goes into Kindergarten. Pray we make the best choices to give Justin the best Kindergarten year he can have.
Today and tomorrow, we will praise God!
The lord has placed Joshua 1:5 on my heart today. "...Never will I leave you; never will I forsake you."
Even when I was angry with God, he did not flee from me! What a great, loving merciful and mighty God I get to serve!!
Earlier this week I posted about the meeting with the lawyer and neurologist. I filled you in on how I am choosing to trust God because I have heard him tell me not to worry. I have heard him say "I've got this." Today, Jake and I were talking money, its a daily conversation in our world. Ethan needs clothes, twins need clothes, boys need shoes, I need clothes after losing 25lbs. Justin's equipment needs, therapy bills (past and present) He still needs botox... the list goes on and on. But, today I said to Jake "I refuse to be an Israelite..." You see, when Jake and I first got married our goal was to read the bible in a year. We still haven't succeeded, but that's not the point. The point is that the book of Leviticus is a hard book to read. Jake and I would sit there and get SO annoyed at the stupid Israelites. I am not kidding! They were such whiners! All they did was complain. God would answer their complaint with a gift and then they would find something else to complain about or better yet, they forgot about the gift from God all together. It was infuriating. It was infuriating until I realized I am so much like that! How quickly I forget the good gifts, the blessings, the grace and mercy. How quickly do I turn and get angry that I didn't get my way. How spoiled am I?!
I continued talking to Jake saying that God has told me he is going to provide this equipment and I am choosing to trust in him. He has been faithful, he has provided our EVERY need since being in TX. He has blessed us beyond what we could imagine!
Because I believe in allowing people their blessings in Heaven I will not share details. I want this to be anonymous and I want them to receive the full blessing of God. In short, Jake and I have the money to buy Jt's wheelchair! Tomorrow we will pay for the wheelchair! Tomorrow has enough worry of it's own, today, today we will rejoice and we with thank God for the kindness and generosity of people. Today we will ask the Lord to bless them as they have blessed us.
Tomorrow is the lawyers meeting which we would still love prayers for. Tomorrow is also JT's IEP meeting. We would love prayers for wisdom for that too. Next year JT goes into Kindergarten. Pray we make the best choices to give Justin the best Kindergarten year he can have.
Today and tomorrow, we will praise God!
The lord has placed Joshua 1:5 on my heart today. "...Never will I leave you; never will I forsake you."
Even when I was angry with God, he did not flee from me! What a great, loving merciful and mighty God I get to serve!!
Tuesday, March 24, 2015
Virginia Birth Injury Fund update and prayers needed!!
Yesterday I received an email from our lawyer back in VA. Her email stated that at 2pm on Friday the 27th she will be meeting with the neonatal neurologist. (my stomach is in nervous knots while writing this). This is it guys! If this doctor agrees that JT's injuries happened at birth then JT will get the fund. Our financial struggles will be greatly reduced! I cannot tell you how hard this year has been and yet, what a blessing it has been. God has granted us so much love and support through our go fund me, friends, fundraisers. We have been abundantly blessed.
I have learned that the Lord provides my daily bread and usually no more than that. It has been an incredible lesson for me. There were a few weeks where, after paying some of JT's bills we had no money. I mean, no money. I couldn't buy bread or milk, I was eeking food out the best I could. Then, one evening a box arrived on our doorstep. It was an amazon prime box full of groceries! I was so confused and then I finally realized, someone bought us groceries. It was at a time where we needed them most. Every time I have prayed about JT's needs and medical bills God has said "don't worry, I have this" I, being a true sinner, look to heaven and say "I am trying with all my might to trust you". Trust doesn't come easy to me. I am a bit of a go getter. I will solve the problem my way. While we have been in turmoil and I have been learning what it means for the Lord to provide my daily bread, I have come to realize that I have been trying to solve the problem on my own. Right now I am a pampered chef consultant. It's something I enjoy and it brings in a little money to help with things. I have been approached by several other consultants to join them in their venture. It has always been tempting but hasn't felt right. Why? Because I truly believe the Lord didn't want my hand in this at all. I believe he wanted to show me that HE will provide, that HE does have this, that I CAN trust him.
So, now that I am at a point where I worry much less, where I can actively see God's hand working and moving and providing I get here. We have been working 2 years to get here. Now I learn the lesson of waiting. I HATE waiting! My nerves get all crazy and I literally get stomach pains. (Great for my diet, lol can't eat!)
Anyway, so here we are, waiting, for the final verdict. My prayer is of course that JT would get the fund, but more than that, my prayer is that Jake and I will be at peace with whatever verdict we get. That Jake and I will know, truly know that we are in God's hands. That JT is in God's hands. That the Lord WILL provide our daily bread and sometimes, no more than that. This fund would relieve so much stress from our lives. The need to wait to order equipment until we have money will be gone. JT will be able to get what he needs when he needs it. Right now we have paid 1/3 of what we owe for his new wheelchair. In NOVA it took 3-6 months to get equipment, which gave us time to save money. Here, we have simply 1-2 weeks! We have the second payment (sort of) but not the third. They will not give us his wheelchair until it is paid in full. Instead of worrying, I choose to trust God,(or try my best to trust) to know he will provide in his perfect timing, which is almost never my timing.
This meeting on Friday is a huge praise and an enormous prayer!
Thank you for joining us in prayer! May our voices be raised to the one who sits on high.
Amen!
I have learned that the Lord provides my daily bread and usually no more than that. It has been an incredible lesson for me. There were a few weeks where, after paying some of JT's bills we had no money. I mean, no money. I couldn't buy bread or milk, I was eeking food out the best I could. Then, one evening a box arrived on our doorstep. It was an amazon prime box full of groceries! I was so confused and then I finally realized, someone bought us groceries. It was at a time where we needed them most. Every time I have prayed about JT's needs and medical bills God has said "don't worry, I have this" I, being a true sinner, look to heaven and say "I am trying with all my might to trust you". Trust doesn't come easy to me. I am a bit of a go getter. I will solve the problem my way. While we have been in turmoil and I have been learning what it means for the Lord to provide my daily bread, I have come to realize that I have been trying to solve the problem on my own. Right now I am a pampered chef consultant. It's something I enjoy and it brings in a little money to help with things. I have been approached by several other consultants to join them in their venture. It has always been tempting but hasn't felt right. Why? Because I truly believe the Lord didn't want my hand in this at all. I believe he wanted to show me that HE will provide, that HE does have this, that I CAN trust him.
So, now that I am at a point where I worry much less, where I can actively see God's hand working and moving and providing I get here. We have been working 2 years to get here. Now I learn the lesson of waiting. I HATE waiting! My nerves get all crazy and I literally get stomach pains. (Great for my diet, lol can't eat!)
Anyway, so here we are, waiting, for the final verdict. My prayer is of course that JT would get the fund, but more than that, my prayer is that Jake and I will be at peace with whatever verdict we get. That Jake and I will know, truly know that we are in God's hands. That JT is in God's hands. That the Lord WILL provide our daily bread and sometimes, no more than that. This fund would relieve so much stress from our lives. The need to wait to order equipment until we have money will be gone. JT will be able to get what he needs when he needs it. Right now we have paid 1/3 of what we owe for his new wheelchair. In NOVA it took 3-6 months to get equipment, which gave us time to save money. Here, we have simply 1-2 weeks! We have the second payment (sort of) but not the third. They will not give us his wheelchair until it is paid in full. Instead of worrying, I choose to trust God,(or try my best to trust) to know he will provide in his perfect timing, which is almost never my timing.
This meeting on Friday is a huge praise and an enormous prayer!
Thank you for joining us in prayer! May our voices be raised to the one who sits on high.
Amen!
Saturday, March 14, 2015
reality strikes
This year seems to be a big birthday year for me. As many of you know, after the twins were born I weighed a ton! I was about 197 and very unhappy with myself. As 2015 began, I struggled a lot emotionally with the struggles life was throwing at us. I had nightmares of dying, leaving my kids behind because I was overweight and unhealthy. Then I realized, this year, I turn 37. Why is 37 a big year for me? My brother Rick passed away at 37 of a heart attack. His two darling children found him and had to call 911. Rick and I were not close when I was younger, but we were on our way to rebuilding a relationship. The last time I heard Rick's voice was exactly one week before he died, it was my birthday. He called to wish me a happy birthday. I saved that message for years. I didn't know at the time how to save it forever, I wish I had.
I received a phone call from Jon at about 1am telling me Rick had died. I think my heart may have stopped beating in that moment. I couldn't breathe. Rick was not the healthiest of men. He drank, smoked, didn't workout and didn't have the healthiest of diets. Sadly, Rick was getting it together! He was trying. He had gotten a nice house and a good job. Rick was trying. I looked at my life and realized, I wasn't trying. I didn't want to die and leave my kids because of my health or lack there of. When we moved to Texas I saw a new endocrinologist. She boldly told me that I was at risk for... heart attack (they run in my family. Both my grandfathers and now my brother died much too young from heart attacks), a stroke (they also run in my family. My Grandmerene had several strokes) Diabetes, which to be honest, I think I may have actually had at the time because my weight was so high. My doctor told me to lose 40lbs! The realization of turning 37, a big year for me because of my brother Rick, and the realization that I was literally setting myself up for more health issues was enough to send me over the edge! The right edge though. I jumped to it. In 8 weeks I lost 20 lbs! I began my diet, and daily exercise. Monday I am going to start a new journey. I still have about 15lbs to go and I am looking to drop a few more pant sizes. Monday I will work my way towards being an online fitness coach. I love fitness, I use to call myself an ex-athlete, now I can say I am an athlete again. I am proud of who I am again. I like me. I am looking forward to this new journey, and although I had to lose my brother to be here I am thankful for the life he lived and I am thankful for the death he died. Jesus has saved my soul. I will one day see my brother again in Heaven. I will get to run to him and hug him and tell him how much I missed him. I will get to say thank you. In his death, he may have saved my life. 37 is a big year for me. I am thankful I am married to a supportive loving husband. I am thankful for those God has placed in my life. I am thankful for my brother Rick. (on a side note, Rick's death also saved my little brother. Jon was once obese and is now a 2 time ironman! All because he saw the tragedy in Rick's death and didn't want to travel that road either. Knowing heart issues are big in our family, it's something we need to be aware of.)
Death is always hard to handle. It's hard to say goodbye, to not see them anymore, to know they had so much more life to live. I think we can honor those who have died by allowing their death to help guide us and mold us. This year, I honor my brother Rick, he died much too young, but I will live my life better because of him.
I received a phone call from Jon at about 1am telling me Rick had died. I think my heart may have stopped beating in that moment. I couldn't breathe. Rick was not the healthiest of men. He drank, smoked, didn't workout and didn't have the healthiest of diets. Sadly, Rick was getting it together! He was trying. He had gotten a nice house and a good job. Rick was trying. I looked at my life and realized, I wasn't trying. I didn't want to die and leave my kids because of my health or lack there of. When we moved to Texas I saw a new endocrinologist. She boldly told me that I was at risk for... heart attack (they run in my family. Both my grandfathers and now my brother died much too young from heart attacks), a stroke (they also run in my family. My Grandmerene had several strokes) Diabetes, which to be honest, I think I may have actually had at the time because my weight was so high. My doctor told me to lose 40lbs! The realization of turning 37, a big year for me because of my brother Rick, and the realization that I was literally setting myself up for more health issues was enough to send me over the edge! The right edge though. I jumped to it. In 8 weeks I lost 20 lbs! I began my diet, and daily exercise. Monday I am going to start a new journey. I still have about 15lbs to go and I am looking to drop a few more pant sizes. Monday I will work my way towards being an online fitness coach. I love fitness, I use to call myself an ex-athlete, now I can say I am an athlete again. I am proud of who I am again. I like me. I am looking forward to this new journey, and although I had to lose my brother to be here I am thankful for the life he lived and I am thankful for the death he died. Jesus has saved my soul. I will one day see my brother again in Heaven. I will get to run to him and hug him and tell him how much I missed him. I will get to say thank you. In his death, he may have saved my life. 37 is a big year for me. I am thankful I am married to a supportive loving husband. I am thankful for those God has placed in my life. I am thankful for my brother Rick. (on a side note, Rick's death also saved my little brother. Jon was once obese and is now a 2 time ironman! All because he saw the tragedy in Rick's death and didn't want to travel that road either. Knowing heart issues are big in our family, it's something we need to be aware of.)
Death is always hard to handle. It's hard to say goodbye, to not see them anymore, to know they had so much more life to live. I think we can honor those who have died by allowing their death to help guide us and mold us. This year, I honor my brother Rick, he died much too young, but I will live my life better because of him.
Monday, March 9, 2015
What just happened
Jake and I have had the same insurance since we were married. It was fine insurance but, then again, not really. Humana, wouldn't pay a dime for any of JT's equipment or needs. His equipment was considered "durable medical equipment" and was not covered by insurance. This never mattered because we had Medicaid for JT. We are now in TX and have changed insurance. We are unfamiliar with how this company works and we no longer have medicaid to back up the claims that get denied. I will tell you they won't pay a dime for JT's botox injections because it's considered cosmetic.
Anyway, we submitted claims to Aetna, our new provider for JT's new wheelchair, a new bath chair and a new posterior walker. The other day, I got the letter, you know that denial letter stating sorry we aren't going to help you so good luck finding the money to help your child. I opened it up, began reading... what?!?? What is this? Jake? What is this? Does this say what I think it says??
Jake began reading... Wait, what? wait...
The insurance APPROVED the claims! WHAT?!??!! Our insurance is paying for everything minus a few parts. Now, those few parts in reality could still be a few hundred to a few thousand dollars, but still! My head is spinning. This is a miracle and an enormous blessing!
As some of you know, I have been searching for a job. Preferably one I could do from home. Paying for JT's medical bills is killing us and we need more income. Every time I looked for a job my heart sank and I got sick to my stomach. I would pray. Every time, every single time, I heard God say "I've got this." I would sort of say ok and drop it. Trying my best to believe him, trust him, not take over. I continue to sell Pampered Chef and I am now becoming an online fitness coach. Two things I love to do and I can do from home. Whatever money comes in is great, but it's never going to be enough. Only God is enough, only He can provide, and He does! He provides our daily bread. I am learning that lesson more and more every day. God is quite literally providing our daily bread, and now with this insurance thing, I mean, wow!
God is awesome and once again, I am in awe!
Have a great day and join us in praising God for this awesome gift!
Anyway, we submitted claims to Aetna, our new provider for JT's new wheelchair, a new bath chair and a new posterior walker. The other day, I got the letter, you know that denial letter stating sorry we aren't going to help you so good luck finding the money to help your child. I opened it up, began reading... what?!?? What is this? Jake? What is this? Does this say what I think it says??
Jake began reading... Wait, what? wait...
The insurance APPROVED the claims! WHAT?!??!! Our insurance is paying for everything minus a few parts. Now, those few parts in reality could still be a few hundred to a few thousand dollars, but still! My head is spinning. This is a miracle and an enormous blessing!
As some of you know, I have been searching for a job. Preferably one I could do from home. Paying for JT's medical bills is killing us and we need more income. Every time I looked for a job my heart sank and I got sick to my stomach. I would pray. Every time, every single time, I heard God say "I've got this." I would sort of say ok and drop it. Trying my best to believe him, trust him, not take over. I continue to sell Pampered Chef and I am now becoming an online fitness coach. Two things I love to do and I can do from home. Whatever money comes in is great, but it's never going to be enough. Only God is enough, only He can provide, and He does! He provides our daily bread. I am learning that lesson more and more every day. God is quite literally providing our daily bread, and now with this insurance thing, I mean, wow!
God is awesome and once again, I am in awe!
Have a great day and join us in praising God for this awesome gift!
Monday, March 2, 2015
Sam
Sam, Sam is a young man who we met through Justin's physical therapist. Kathy, JT's therapist, kept telling me about Sam. She would tell me how well Sam is doing, how Sam is so much like JT. Sam has had the same struggles as JT and so on. Finally, one day, we met Sam. Sam is a bright and witty 14 year old. He uses crutches to walk, or a wheel chair to get around. The first time we met Sam he sat down with Justin to tell him to be strong, and never give up. Since our first meeting, we have bumped into Sam a few times at PT. Recently, we happened to walk in on one of his sessions, Sam was standing up working on his backhand! Yes, he was playing tennis! I wanted to cry. We all stood there and cheered for Sam. It was good therapy for Justin too, because as he watched Sam and cheered for him, Justin held his head up in midline. Sam is inspiring!
Last night we had the joy of having Sam and his family over for dinner. Sam has two little sisters who are full of energy. To say our house was a full house last night is an understatement! It was AWESOME! The kids were loud and had a great time. Sam's parents, Wade and Jennifer are also truly inspiring. They are so encouraging, wise, and full of insight. They push Sam in the same ways we push JT. Why? Because we have been gifted with smart, funny, kind boys. So, we push them, because they can be pushed. We talked about how sometimes we push them too far, we expect too much. In that, we are just parents doing our best, wanting so much for our boys. We too are flawed in so many ways. But, we don't give up on them and they don't give up either.
I am rambling, I know, but I just can't help it. I will end with this, at the end of the night Sam got on the floor and was crawling around playing with all the kids. JT was in his chair at a table. Sam came to me and asked if Justin could get on the floor so they could crawl around together. I said sure and went over to get JT out. Justin still cannot crawl but he can move himself around. Sam was on the floor telling JT to roll over, another task that is VERY difficult for Justin. Sam said "here, I will show you" The two of them worked together, laughed and then JT did it! He rolled over! Sam was so excited for him. Then out of no where, JT started crawling! I needed to help him a little but Justin did it, he did it all on his own. Then Sam said "Justin, when I see you on Friday, I want to see you roll." Then his mom said "make him a bet" Sam said "Justin, if you roll on Friday, I will spend the night at your house." I cracked up! His mom said "I meant something like a candy bar or something like that."
Today is a new day with new strides and challenges. Today JT woke up, we are trying some new breakfast ideas (thanks to Wade and Jennifer for the great ideas) for JT so he can eat more calories, an enormous challenge for kids with CP. After breakfast I told JT it was time to get some work done. Justin asked if he could practice rolling so he could roll for Sam on Friday. So, I put him down, he asked for my help and I told him he had to figure it out. Then, off he went. He rolled over about 5 or 6 times. I know it might now sound like much, but for Justin this is incredible and incredibly exhausting. He was so proud of himself and I am so proud of him.
Being in Texas has been a challenge for so many reasons. But then, I look at Sam and his awesome family and I am so thankful we are here. We have known few people with children with disabilities like JT. Those we do know, the children are Justin's age and not as physically disabled. So please make no mistake, meeting Sam and his family is a true gift from God. They have so much to share and we are so thankful that they are willing to share with us.
I can only hope and pray that JT and our family can help inspire and guide a family in the future. We are truly blessed. (I think it's the first time I am thankful, truly thankful we are here.)
Last night we had the joy of having Sam and his family over for dinner. Sam has two little sisters who are full of energy. To say our house was a full house last night is an understatement! It was AWESOME! The kids were loud and had a great time. Sam's parents, Wade and Jennifer are also truly inspiring. They are so encouraging, wise, and full of insight. They push Sam in the same ways we push JT. Why? Because we have been gifted with smart, funny, kind boys. So, we push them, because they can be pushed. We talked about how sometimes we push them too far, we expect too much. In that, we are just parents doing our best, wanting so much for our boys. We too are flawed in so many ways. But, we don't give up on them and they don't give up either.
I am rambling, I know, but I just can't help it. I will end with this, at the end of the night Sam got on the floor and was crawling around playing with all the kids. JT was in his chair at a table. Sam came to me and asked if Justin could get on the floor so they could crawl around together. I said sure and went over to get JT out. Justin still cannot crawl but he can move himself around. Sam was on the floor telling JT to roll over, another task that is VERY difficult for Justin. Sam said "here, I will show you" The two of them worked together, laughed and then JT did it! He rolled over! Sam was so excited for him. Then out of no where, JT started crawling! I needed to help him a little but Justin did it, he did it all on his own. Then Sam said "Justin, when I see you on Friday, I want to see you roll." Then his mom said "make him a bet" Sam said "Justin, if you roll on Friday, I will spend the night at your house." I cracked up! His mom said "I meant something like a candy bar or something like that."
Today is a new day with new strides and challenges. Today JT woke up, we are trying some new breakfast ideas (thanks to Wade and Jennifer for the great ideas) for JT so he can eat more calories, an enormous challenge for kids with CP. After breakfast I told JT it was time to get some work done. Justin asked if he could practice rolling so he could roll for Sam on Friday. So, I put him down, he asked for my help and I told him he had to figure it out. Then, off he went. He rolled over about 5 or 6 times. I know it might now sound like much, but for Justin this is incredible and incredibly exhausting. He was so proud of himself and I am so proud of him.
Being in Texas has been a challenge for so many reasons. But then, I look at Sam and his awesome family and I am so thankful we are here. We have known few people with children with disabilities like JT. Those we do know, the children are Justin's age and not as physically disabled. So please make no mistake, meeting Sam and his family is a true gift from God. They have so much to share and we are so thankful that they are willing to share with us.
I can only hope and pray that JT and our family can help inspire and guide a family in the future. We are truly blessed. (I think it's the first time I am thankful, truly thankful we are here.)
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