Hello again,
I know this update is a quick one, but when it's good, no great news we just have to share! The developmental specialist saw JT today and she said that if she didn't know he had PVL (the brain damage) she would have never guessed. His exam was "normal" meaning no signs of anything wrong!! Now, this is still a prayer request b/c as he grows and develops the delays could show themselves later. She did tell me he is a high risk child b/c of the PVL. But, with that, right now, today, he looks fantastic! ALSO, it looks like he could be coming home... this weekend or early next week! He is going to have a ton of "test" this week. He has to have an MRI on his brain, and do other smaller tests. They asked me to bring in his car seat which is another big sign that they are getting ready to send him home. So, with these tests all he needs to do is continue to be a great eater so we can get him off the tube. Looks like we are going to get our early Christmas present :-)
If you would, please first give thanks to our Lord and Savior for ALL of his mercies throughout this process. Then please pray for his MRI. Pray that he is able to stay as still as possible and that they are able to get clear pictures of his brain. Pray that his brian has healed and the PVL is no longer a concern. Pray for his Apnea study, pray that he is able to breath with ease and has no issues. Pray for his brady's, he continues to have some here and there. Pray for his eating, that he continues to do the incredible job he is doing.
Pray for Jake and I. Having JT come home is so overwhelming in so many ways. We couldn't be more excited, yet somewhat nervous and cautious. Pray that we would continue to feel the peace that passes all understanding. Pray that we would continue to put our trust in the Lord. Pray for Ethan. He has been such a fabulous little man through all of this. Pray for the change that is going to occur in his life when JT comes home. Pray that Ethan will love his little brother and care for him. Pray that Jake and I would learn how to make both of our children a priority. Pray that we will be able to spend special time with each of them individually as well as together.
Thank you all for your time in reading our updates, for your love, support, encouragement and prayers. We are so extremely blessed!
We love each and every one of you!
Jake and Melissa
I know this update is a quick one, but when it's good, no great news we just have to share! The developmental specialist saw JT today and she said that if she didn't know he had PVL (the brain damage) she would have never guessed. His exam was "normal" meaning no signs of anything wrong!! Now, this is still a prayer request b/c as he grows and develops the delays could show themselves later. She did tell me he is a high risk child b/c of the PVL. But, with that, right now, today, he looks fantastic! ALSO, it looks like he could be coming home... this weekend or early next week! He is going to have a ton of "test" this week. He has to have an MRI on his brain, and do other smaller tests. They asked me to bring in his car seat which is another big sign that they are getting ready to send him home. So, with these tests all he needs to do is continue to be a great eater so we can get him off the tube. Looks like we are going to get our early Christmas present :-)
If you would, please first give thanks to our Lord and Savior for ALL of his mercies throughout this process. Then please pray for his MRI. Pray that he is able to stay as still as possible and that they are able to get clear pictures of his brain. Pray that his brian has healed and the PVL is no longer a concern. Pray for his Apnea study, pray that he is able to breath with ease and has no issues. Pray for his brady's, he continues to have some here and there. Pray for his eating, that he continues to do the incredible job he is doing.
Pray for Jake and I. Having JT come home is so overwhelming in so many ways. We couldn't be more excited, yet somewhat nervous and cautious. Pray that we would continue to feel the peace that passes all understanding. Pray that we would continue to put our trust in the Lord. Pray for Ethan. He has been such a fabulous little man through all of this. Pray for the change that is going to occur in his life when JT comes home. Pray that Ethan will love his little brother and care for him. Pray that Jake and I would learn how to make both of our children a priority. Pray that we will be able to spend special time with each of them individually as well as together.
Thank you all for your time in reading our updates, for your love, support, encouragement and prayers. We are so extremely blessed!
We love each and every one of you!
Jake and Melissa
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