This past week JT had his 1 year check up with the pediatrician as well as his neurology appointment. The pediatrician went well. Sadly we were referred to yet another doctor for Justin. A pediatric surgeon. Apparently in premie boys have all sorts of issues. In this case JT's testicles have not fully descended and he will need surgery to bring them down to where they belong. So in a week we will see the doctor and schedule the first of JT's surgeries. Then at the neurology appointment the neurologist recommended that JT be followed by a physical medicine doctor. He will meet this doctor at his first PBI (pediatric brain injury) clinic. This doctor will follow JT and help us determine what other kinds of special needs equipment he might benefit from. (this is along with his physical therapist) We also were told that his kind of cerebral palsy is the harder of the two to treat. He is low tone and it is simply harder to help low tone children than high tone. His neurologist also got the ball rolling for ordering the MRI of his brain. From there we will be able to see if his vision problems are from his original brain injury (the PVL) or if there is more damage to the brain than originally thought. We will just have to wait and see.
Then today, ah, today. Yesterday I noticed JT favoring his right leg. I decided to just watch him to see what was going on. Then this morning I put on his shoe and heard the loudest most painful cry I have ever heard from either of my children. JT was obviously in extreme pain. Being his mommy and putting him in pain killed me. I immediately took off his shoe as carefully and as quickly as I could and tried to calm him down. I called Jake at work and told him something was wrong and we needed to take JT to the ER. I went and picked Jake up from work and took JT to urgent care. God bless urgent care! They are quick and wonderful :-) While there they took about 4 or 5 x-rays of JT's leg. I had to hold my poor baby still while he screamed in pain. It was HORRIBLE! Jake said he just wanted to cry from the room where he was waiting with Ethan. Finally the doctor came back and told us there was no break they could see. Great news! Then what is going on?? I forgot to mention, his foot is swollen and he seemed to be tender around his tibia as well. So the doctor said the ever famous words that we seem to hear much to often, wait. UGH! ok! wait it is. :-P We are to wait 24 hours to see if there is any change in his condition. If there is no change we will go to a pediatric orthopedist and have a bone scan done to see if there is a hair line fracture or anything of that nature. For now, we just wait. The said try to elevate it. HAHAHA! yea right!! I mean, we will do our best but although he isn't moving, he is a mover and a shaker.
For now if you have a moment please pray for Justin. Pray that his leg would heal and the swelling would go down. Pray for reprieve. Pray he can catch a break, a healing break. Pray for his appointment next week and for his first surgery. Pray for the sustaining grace of our Lord and Savior.
Thankfully Jake and I are doing well through all of this. We are thankful for all God has given us including the struggles. If we didn't have trials and struggles how would we grow stronger. If we didn't have these times how would we learn to lean on Him and trust in Him? God is good! He loves us and is forever calling us to his loving arms. We are so thankful for that. We are at peace and know that He is in control. It's such a peaceful feeling.
Thank you for your prayers, love and support.
Jake and Melissa
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