Sunday, February 9, 2020

Past and present

It's amazing how God uses your past to help you make it through events in your future. Two nights ago, being woken every three hours by JT was like having a newborn again. Last night was a step forward but felt like a step backwards.  Last night we were reminded of the days with NICU babies. We had to wake JT every 3-4 hours for medicine.  Jake and I made it through those days once, we can do it again! Still, those memories fade but never go away. We had so many long nights and these days are no different, except we are older and take longer to recover. HA!

Last night was full of answered prayers! The weather was calling for thunder storms.  JT is not only scared of them, but each rumble of thunder makes him startle.  We were so worried about storms last night.  We asked people to pray specifically that if there was thunder it not start until later today.  That prayer was answered 100%! Not a single rumble of thunder was heard throughout the night. 

Today our continued prayer is for pain management and that we can slowly wean off the medications.  We are beginning to space out some of the bigger/heavier meds already.  It seems to be going well. 
I have to tell you, it's hard to see your child absence of their personality.  His smile is here and there, his laughter only comes after one of the medications.  He slurs his words so badly we can hardly understand him.  I miss my son.  Each day I see glimpses of him and I pray that each day will continue to see more and more of him.


Pray for Jake if you would. He is doing 90% of lifting and carrying JT right now.  He is 45lbs of dead weight and on top of that Jake has to manage his position as to not hurt him.  Jake's back is beginning to hurt, so pray for supernatural strength.

Praise and prayer - Jt is starting to eat more but still has yet to eat a meal. His body is so tired and so full of medications.  We are doing our best to give him protein shakes and yesterday I made him a milkshake.  At this point anything fatty is good! Pray for his appetite to come back sooner rather than later.

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